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How private are my genetic test results?

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1 fertility expert(s) answered this question

Answer from: Douglas Lester, PhD, MSc, BSc (Hons)

Geneticist, Co-Founder & Chief Scientific Officer Fertility Genomics
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Your genetic results belong to you. You don’t have to disclose them to your partner or anybody else in this world unless you want to. Your result is firewalled in a private database. They won’t be shared; your name will never be shared with anybody else and will never be linked with that DNA result. However, the DNA result will be anonymized in another database with a special code that is impossible to crack. Your names are on a separate database. Any date DNA data will be anonymized, so there’s no linkage with the name. The anonymized DNA database can then be used by drug companies that need to find new infertility treatments and also contraception.
They’re looking for male contraception in the third world; some of these genes may be useful as drug targets for cheap male contraception. But that database will have no link to names; the only time the two are together is when you put in the special code on the computer from your email. You put in the special code, log in, and get the result there on the computer. It’s hopefully as safe as we can make it.

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Genetic tests - how confidential are the results?

In a world of DNA tests being more and more common and easily accessible, you might be asking yourself how private and confidential your genetic test results are.

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