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How do you know what stage of endometriosis you have?

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3 fertility expert(s) answered this question

How do I know if my endometriosis is severe?

To properly determine the stage or severity of endometriosis, a key hole surgery is needed. How is it precisely described?

Answer from:
Gynaecologist, Fertility specialist and Gynaecologist at London Womens Clinic
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Basically the diagnosis of the disease is mainly dependent on your symptoms of painful periods and painful intercourse – so these are two main symptoms of the problem. Obviously on that basis, if there is strong clinical judgment. The disease could still be treated regarding the symptoms which the patient has but if the initial treatment fails and the patient does not improve, then the next step could possibly be putting the camera inside the tummy under an aesthetic and see and categorize the disease. So, that is the gold standard for the diagnosis and it can also help us classify and stage the disease as well but it is not necessary to do in every case of endometriosis, they can be managed on the basis of clinical symptoms only.

Answer from:
Gynaecologist, Co-Director EXPPECT Edinburgh, Chair of Academic Board RCOG, Professor of Gynaecology and Reproductive Sciences at The University of Edinburgh 
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By asking the surgeon if they could provide that information at the time of surgery. The only way of finding out what stage you’re at is by having the operation and by the surgeon documenting where it is and what organs it’s involving.

Answer from:
Gynaecologist, Consultant obstetrician & Gynaecologist at South Tyneside & Sunderland NHS Foundation Trust UK
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The stage of endometriosis is usually considered or the endometriosis is staged by a laparoscopy. Laparoscopy is considered the gold standard to confirm and stage endometriosis so, it’s a simple day case procedure we do it by keyhole and put the camera through the belly button and have a look inside, we confirm endometriosis, we can biopsy it as well so, we send the biopsy for histology to confirm that the lady has endometriosis and we can easily by just looking at the endometriotic implants or lesions, we can make the diagnosis. We stage it according to the depth and the number of the lesions we see, the endometrial implants so, simply saying that the less the spots and the less the lesions the early stage is the endometriosis.
So endometriosis has four stages according to the American classification stage I is minimal and where only very very few spots are present in the pelvis or on the tubes, behind the womb. Stage II, is there are more dense spots available and it is actually mild. Stage III is moderate where you have deeper lesions of endometriosis and they can affect also the ovaries by producing cysts like chocolate cysts and stage IV is the severe type of endometriosis where endometriosis is everywhere which has healed by scarring and adhesions and sometimes the back passage is stuck to the back of the womb and we call the space behind the womb, we call it pouch of Douglas is obliterated completely because everything’s stuck together and the pelvis we call it “frozen pelvis” because of the severe or advanced endometriosis so, the staging is usually done by the laparoscopy and the endometriosis is confirmed normally by laparoscopy.

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